DEALING WITH THE DIAGNOSIS

DIAGNOSIS , Patellofemoral Pain Syndrome, diagnosis, MRI, SCANS, HOSPITAL, KNEECAP, KNEE PAIN, JOINTS, SWELLING, PHYSIOTHERAPY

A few months ago I wrote my very first personal post about my struggles with mental health, and how it as been effected by my knee problems. You can give it a read here. Since then I have seen specialists, and been for tests and scans. As I explained I have had knee problems for as long as I can remember, however I thought I had done some further damage whilst running. Well a couple of weeks ago I was called back to the specialists to discuss the diagnosis. It was a mixed bag of emotions kind of day. I did not even know what results I wanted. A problem on the scan, would lead probably lead to surgery and I may be fixed forever. More importantly I would have something to blame for this ongoing issue and pain in my life. If the scan came back clear, the likely hood was this would be a chronic pain and I would have to live with it forever. Neither sounded like great options to me.

DIAGNOSIS , Patellofemoral Pain Syndrome, diagnosis, MRI, SCANS, HOSPITAL, KNEECAP, KNEE PAIN, JOINTS, SWELLING, PHYSIOTHERAPY

On the positive note the scan came back clear. That meant no surgery. Which is great as knee surgeries do not always work and have a high chance of getting worse. Also my nana as juts her her hip replaced and surgery was not a good thing in my mind. The downside – no real diagnosis, nothing to blame and something I may have to live with forever. I literally ran into the toilet and burst into tears. I mean I am 25 and cant even go for an hours walk around town, without my knee being like a balloon and suffering from shooting pains all night.

It was decided that physiotherapy was the best first option for me, and any other serious treatment could come later. As it stands physio has a great success rate for these sorts of problems, and you dont really want someone messing with your knee unless you have to.  After a calming down by my mum, I realised this was the best possible outcome and in fact it was really positive.

THE DIAGNOSIS

I hate the day of physio. Your knee is prodded, poked, stretched and bent in so many different ways. It generally is left to be quiet painful for the rest of the day! However my physiotherapist was lovely and really understanding of the issues I faces and how it effected my everyday life. As well as this the best thing happened, she actually ad a diagnosis. It felt great that I could finally understand what was going on with my body and what we could do about it. Also that over time my knee could be as good as new.

Patellofemoral Pain Syndrome

Patellofemoral pain syndrome is pain in the front of the knee. It frequently occurs in teenagers and athletes. It sometimes is caused by wearing down, roughening, or softening of the cartilage under the kneecap. Patellofemoral pain syndrome may be caused by overuse, injury, excess weight, a kneecap that is not properly aligned (patellar tracking disorder), or changes under the kneecap.

So I’ve got the one where my kneecap is not properly aligned, this causes the kneecap (patella) to shift or tilt out of place as the leg bends or straightens. Which is what causes such aggravation when walking or working out. However it can be fixed by ongoing physiotherapy

PHYSIO PHYSIO PHYSIO

The problem with physio is it is no quick fix. You are the one in charge and you are the one in control. People may say it is easy, and why wouldn’t people do it to make themselves better. However for most everyday life gets in the way. It has to be turned into a religious thing like brushing your teeth. You do that 2 times a day. Now yo have to do these exercises 3 times a day. You have to adapt a mindset to just get it done with, otherwise this problem will not only go away but end up getting worse. I do my workouts in the morning, so after Ill just add on my physio. I will then do it after lunch, and my last session at night in front of the TV. If this means I can get running, and finally manage to run a marathon the dedication is there. I just wish it hadnt taken 10 years for this diagnosis, as I could have already been fixed. However there is no looking into the past and I can finally look forward.

Have you ever had any issues that effect your lifestyle and way of living?

Related posts

18 thoughts on “DEALING WITH THE DIAGNOSIS

  1. Girl I understand your pain!! I’ve been on crutches for the past seven months, was in a cast for three months from my ankle to the top of my thigh. I’m currently waiting on an MRI! I’m in the exact same boat you were in, if the scan comes back clear no surgery which is good but then where the hell is the pain from?!? I already go to physio every week and it’s not helping and totally a waiting game for this scan! So trust me, I feel your pain!!
    PaleGirlRambling xo

    1. Lolamia

      Oh my days I am so sorry to hear that. It must be such hard work for you! Well by your sounds your recovering from trauma and physio is not a fast game unfortunately we just have to wait for the muscle to grow stronger! I really hope you get better soon and stay in touch if you need someone to talk to! 🙂 x

  2. All I can say is that I wish you luck with your physio! I’ve fortunately never had to put up with it, I just tend to get ill quite a bit! I’m sorry this has happened but as you said onwards and upwards! xx

    sophieannetaylor.blogspot.co.uk

    1. Lolamia

      Thank yo so much that means a lot. Well I hope your immune system boosts up a bit! x

  3. Hi. I read your other post and found it fascinating and no doubt many others who are in a similar situation can empathise with. At least you have a diagnosis now and good luck with the physiology, Chloe #TeacupClub

    1. Lolamia

      Oh thank you so much Chloe I really appreciate it. I hope it can help others in my situation or people to reach out to loved ones aybe suffering x

  4. So pleased that you have a diagnosis and that you have a set treatment plan! Knowing something is wrong but not knowing what is the most frustrating thing because you can’t move forward to getting it fixed. I used to get fits of nauseating pain in my stomach that would make me throw up. I went to loads of doctors but nobody could figure it out. Thankfully, it seems to have stopped happening but I can imagine the frustration if it had carried on. I really hope you get to complete a marathon one day, that would be an amazing achievement!

    http://www.mindofabadger.co.uk

    1. Lolamia

      Thanks. Oh yes it means the world its so frustrating just not knowing and not having the solution for so long! Oh dear that sounds awful I a so glad you are feeling better and I really hope it does not come back! Thanks that means a lot! x

  5. This is a really great way of explaining and I wish you all the best! You’re a strong person and this will only make you more so x

    1. Lolamia

      Thank you so very much that means a lot! 🙂 x

  6. The only issue I had are migraines which can be so strong and look like a stroke. Which is super stressful, but apart from that, nothing major. Few of my friends where suffering from the same condition as you. I can imagine how hard it must be to adapt your lifestyle to the change. But I am sure you’ll be fine! xx corinne

    1. Lolamia

      Oh I cant imagine how horrible that is! I had sinusitis with insane migranes so I couldnt imagine suffering from them constantly!Its been a nightmare for an active person but now hopefully it will be right again in a year or so! x

  7. Kimberley

    such an honest post I found it really interesting to read. I’ve had problems my self and it look me so long to get my doctors to believe me! Luckily I now have a great doctor who helps me to no end 💖

    1. Lolamia

      I hate it when the doctors dont believe you its a nightmare! Mine did but it took them ages to do anything about it! I am glad you finally got it sorted though 🙂 x

  8. Bless you! I completely feel you! I had an accident at a football ground (which they did nothing about) where the fence collapsed under the weight of so many people (it was almost as though they’d let too many in). I happened to be at the bottoms of the pile of people and damaged my knee. I ended up in A&E but where it was so swollen they couldn’t see what was wrong. I was left with crutches and not knowing what was wrong. It’s still bad to this day

    Tasha x

    http://itsatashathing.blogspot.co.uk/2017/03/mothers-day-gift-guide-2017-last-minute.html

    1. Lolamia

      Oh dear that sounds awful and a bit of a Deja Vu – these events have happened before you would have thought they would have known better. You should have blooming sued! Did they MRI it? you should really get it checked out. You dont want to have knee problems young it does not bode well for the future! x

  9. I’m so sorry you’re going through this, though hopefully the physiotherapy helps relieve symptoms over time. It sounds like it was a relief when you finally received your diagnosis!
    I had a problem with my knees when I was younger. It started when I was 9/10 years old, and continues nowadays, but it’s worse in extreme cold or heat. When I was younger my knees used to be in so much pain I couldn’t walk very well/far at all, and never did much in P.E at school because it would be so painful. The doctors put it down to growing pains at the time, but we tried deep heat and cold compresses and nothing helps. I guess the fact it’s still happening at 18 disproved their theory, haha!

    1. Lolamia

      Yes I really hope so its no quick fix though! It was such a relief only took about 10 years hahaha. Oh yes mine if awful in the cold! and when it rains! Well maybe you have what I have its worth investigating. Its apparently really common. x

Leave a Comment